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I have read the messages with great interest. I have LOCAH that was diagnosed some 7 years ago but my doctors have all contradicted eachother regarding treatment and truth be told, I feel as bad now as I did when they diagnosed it. I also have kidney problems and they have had challenges in dealing with that too. I am convinced that there is a connection. I am seeing the urologist again tomorrow and will let know what he thinks on the matter.
Hang in there, there must be a solution for us out there :-)
