Congenital Adrenal Hyperplasia

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re: Are illnesses harder to get over with NCAH?
Aug. 9th, 2007   8:15am

There are a couple of issues here and one is, depending on what her baseline and stimulated testosterone and androstendione levels were, you could be setting the stage for the development of PCOS. PCOS seems to be more common in untreated or inadequately treated NCCAH women. What do her doctors think about this?

Also do you know what her stimulated cortisol level was? If this was <18ug/dl or < 500 nmol/L then your daughter is at possible risk of adrenal crisis if certain circumstances all come together. Adrenal insufficiency though is not usually such a big problem in NCCAH.

Regarding the fevers I do believe there may be a connection between disordered adrenal function and fevers. I have a very old research paper from 1958 entitled" "The Possible Relationship of Etiocholanolone* to Periodic Fever" by Bondy; Cohn; Herrmann & Crispell published in The Yale Journal of Biology and Medicine, Inc.

This paper outlines a case of a man (who became a physician) but had frequent fevers since he was 8 years old. These fevers continued for 26 years until he was 34 when he was eventually diagnosed with CAH.

The fevers are something I have had when my treatment has been either non-existent or inadequate.

Megan




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