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re: re: re: re: re: re: Are illnesses harder to get over with NCAH? Aug. 15th, 2007 2:11pm
I APPRECIATE YOUR RESPONSES. A LOT OF PEOPLE SEEM TO THINK NOT TREATING IS A BAD IDEA, HOWEVER, I HAVE HEARD BEFORE THAT GROWTH VELOCITY IS DECREASED WITH STEROIDS. OUR DAUGHTER FOR WHATEVER REASON IS ONLY EXHIBITING MINOR SYMPTOMS SO I'M SURE WE WILL CONTINUE TO MONITOR HER AND TREAT OR NOT TREAT ACCORDINGLY. WHICH STUDY AT NIH WERE YOU IN? I JUST CALLED TO SEE ABOUT THE NATURAL HISTORY ONE, BUT HAVE NOT HEARD BACK. I'M NOT SURE I HAVE THE CORRECT NUMBER. I THINK IT IS ENTIRELY POSSIBLE EITHER ONE OF US OR BOTH MY HUSBAND AND I HAVE NCAH. WE HAVE NOT HAD ANY GENETIC TESTING DONE YET. WE HAD TERRIBLE HEALTH INSURANCE WHEN OUR DAUGHTER WAS DIAGNOSED AND PAID CASH FOR EVERYTHING. WE ARE ALMOST DONE PAYING IT OFF. THANKS AGAIN FOR YOUR INTEREST AND FEEDBACK.
