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re: re: re: re: re: re: re: Are illnesses harder to get over with NCAH? Aug. 16th, 2007 12:49am
The study we participated in was the natural history study. It was a wonderful thing to do. We got lots of information. It was pretty exhausting though. We traveled from California and missed our plane getting there. The kids were pretty beat by the end of it......but still I would do it all over again. The person to contact there is Carol Van Ryzin. She has been out of the office for a couple of days so maybe that's why she hasn't gotten back to you. Her # is: (301) 451-0399.
Good luck to you. I agree, it's very difficult to know what to do as far as treatment with this condition because every case presents itself differently. What were the symptoms that your daughter had that made you seek treatment?
