My 3 children all have LOCAH. My oldest started showing signs at age 5 (putrid under arm odor, blackheads on her nose, pubic hair) but was not diagnosed until she was age 7, but my other 2 were diagnosed at ages 5 from lab work. My kids are now ages 18, 15 & 11. Boys are less affected with LOCAH than girls. Treat your kids SYMPTOMS not their labs. My kids' labs were treated for many, many years and they were all over treated which resulted in stunted growth, depression and rapid weight gain. There is a fine line between over treatment and under treatment because under treatment can result in stunted growth as well. Call up CARESFoundation because they are a wealth of support & information. They are the folks who helped me discover my children were being over treated. There is a great book out there and I'm sorry I've totally forgotten the name & authors but maybe someone here will mention it, you can find it by searching the archives or asking CARES. The "adrenal failure crisis" is something that could happen and does, but in all my years it never has happened to me (I'm almost 48yrs old and never had one - I have LOCAH too) and never has to any of my children. They have gotten really sick at times and I've taken one daughter to the ER twice for fluids after vomiting a lot, but lots of regular kids get fluids after vomiting a lot too. I think the worst thing about LOCAH for me and my family is the upkeep, the preparation in case something would happen and as an adult is the hair growth, fat tummy, migraines and fatigue. But my symptoms, I think, would not be as bad if I would have been diagnosed earlier. I was just diagnosed a little over a year ago. This is new and overwhelming, but you will learn, you will adjust and you will live with it. There are a lot worse things your kids could be diagnosed with than LOCAH. God bless you, good luck and remember there are many of us here for you! | 
