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is there any one out there that has more than one child with cah? all three of my children have and my twins were late diagnosed at the age of 3 with a bone age of 9. thay have both had surgery and have been on prostape injections for 4 years to hold back puberty. they are now 11 and are doing ok.
how does any parent cope with all these issues, not being to tell any one about surgery and the girls going into puberty at the age of 4. i have had hypnotherapy to help which does at time, but i still feel anger and resentment to the health visitor and doctor involved. i dont know how to get over that.
