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I'm so sorry for the way you are feeling right now. I know first hand how frustrating it is to go to another wasted dr. appt. I went through so many years of this same BS and finally had a blood test come back postive for LOCAH. Ask your doc about a cortisol stimulation test, it is not a common test but it is what finally diagnosed me after 7yrs of being sick. Not to mention headaches my entire life that no one could explain. You have to have your doc do this stim test and check your pregnegalone(sp) levels along with cortisol, DHEA, ACTh, and aldosterone. Is your blood pressure high, low, or in normal levels. For many years my doc's wanted to treat my elevated b/p, migranes, and put me on birth control for the poly cystic ovarian syndrome. I kept telling them that these were all symtoms of the CAH but they knew nothing about the disease. The point of telling you this is I have known I had this disease through my mothers and my research for many years, not because the doc figured it out so keep on them because no one knows you like you do. Frankly they should be paying me for the education I have given them but unfortunately I have paid them for numerous wasted appts. Just know you are not alone in this and in the mean time take extra vit. D to help your adrenals if you don't already. Hang in and keep fighting.
