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Its amazing how we can all relate to each other. I thought I was going crazy, but its these doctors,I really think they dont know anything about this desease. How scary is that!!! I was diagnosed w/LOCAH but the 2 endo's did not know how to treat it, so I go to a teaching hostipal "supposely they know how to treat it" bull!!! They dont think I have it..back to square one..do testing all over again and wait and see. does anyone else get really bad and feel like these doctors ignore you?