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All 3 of my children have LOCAH. It was tough when my 3rd was diagnosed because I was hoping for at least one "normal" child!!! ha ha ha! There are so many worries as a parent and now there are triple the worries with LOCAH. However, over time it all just became part of our life and I eventually got it all into perspective that it all could be much worse so I became feeling blessed with LOCAH instead of cancer or even diabetes or celiac disease, etc. Each of my children were diagnosed at around the ages of 5, 2 of them took growth hormone injection for a few years. Now my oldest is going to be 18yrs old this weekend and I've been turning all her health care over to her for the past year. My 15yr old has ended up being off all medications at this time!! My one daughter was over treated for several years which caused more harm than good. I was even diagnosed with LOCAH last year and I was 47yrs old! All of our bodies are messed up, our genes are deteriorating, we are not perfect! I would not trade my problems for anyone elses problems!!!
The toughest years are before puberty so I feel for you right now. But you are in the right place being in touch on this board. Have you contacted anyone at CARES? They are a wealth of support and information! Hang in there sweetie!
