Congenital Adrenal Hyperplasia

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re: re: Devestating Doctors Appointment--to Vikki-kat I have a question
Oct. 4th, 2007   9:06pm

Maybe you can help me. I had 2 doctors do lab for ACTH and they both said I have LOCAH. but they didnt know how to treat it. so I went to albany medical (they are a teaching school &"suppose to know it")  so when I seen this endo he said that the lab he was looking at was impossible to high.(have to get a copy of that lab)so I see those results.

so he said; and this was just looking at me you have PCOS..I said I have known that since 1997,but there is something else wrong. he said to me I can tell by looking at you u dont have LOCAH.. (I honestly look like I have cushin's). but I have noticed that he laughs when I ask or suggest things?? I dont like that I feel uncomfortable. but I do think he doesnt know anything!!! maybe you can help me.Here are the first set of lab(when I was dx) please tell me what you think??? I need ur help.

here are some results(lab test)  the may of "07" I still have to get.  Feb of "06" I was preg, so we couldn't do any lab.

8/04..let me know what you think

TIME: 8:29a.m. 17 alpha(OH-progesterone)   * 64

cortisol      *17.7

progesterone   *0.7

17 Hydroxypregnenolone    *137

TIME: 9:36a.m.

17-alpha-hydroxyprogesterone   **143

17 Hydroxypregnenolone   *514

cortisol  * 31.7

TIME: 10:09a.m.

17 alpha(OH-progesterone)  *153

17 Hydroxypregnenolone     *476

Cortisol  *30.8

 

lab in 7/10(2004)

testosterone serum 95

Free testosterone (direct) 7.1

Free T4 0.8

July 31(2004)

free testosterone 3.8

cortisol 0.6

I really appreciate your help.

sincerely,

vikki

Vikki




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