Hello,
Just got my 8 year daughters ACTH lab results. I am going to post them and report the dose of hydrocortisone. I'd appreciate any feedback regarding her numbers and the dosing. Also, anyone with similar results, feel free to tell me what your symptoms were, are now, and how old you were diagnosed, and how old you are now. My daughter just turned eight. Her symptoms thus far are: oily hair and Acne on forhead-since age 5/6. Onset of pubic hair, 6/7 years, thickening quickly, underarm hair, late 7 yrs, body odor, late 7 years. Her last Bone advancement at 7 years 8 months, was at 8 years, 10 months. Here are her lab results.
Base Line 60 minutes range
CAH Cortisol 10 13 3-21 mcg/dL
CAH Desoxycortisol 80 98 20-155 ng/dL
CAH Deoxycorticosterone 3 13 2-34 ng/dL
Testosterone 31 31 3-10 ng/dL
CAH Androstenedione 194 212 8-150 ng/dL
CAH Dehydroepiandrosterone 856 936 20-275 ng/dL
CAH Progesterone 66 460 7-52 ng/dL
CAH 17 OH Progesterone 3070 7400 3-90 ng/dL
CAH 17 OH Pregnenolone 665 1420 10-186 ng/dL
Her endocrinologist wants to start her on hydrocortisone, cortef, 5mg. 3x daily.
Please let me know your thoughts.
Michelle
