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re: I feel so lost! Please help! Dec. 12th, 2007 11:21pm
There is a link in the upper right corner of this page to caresfoundation.org. You will find a lot of easy to understand information there.
As Megan said, Late Onset (also called Nonclassical) CAH is much milder than Classical CAH. Most of what you find on the Internet will be about Classical, including what you read about abnormal sex organs. Also, just having a slightly elevated 17 OHP level does not mean that you have LOCAH. You will need additional testing.
If you do have it, most likely the type will be 21 hydroxylase deficiency, which is characterized by high 17 OHP levels. The symptoms are those of androgen excess, such as acne, irregular periods, excess hair, etc. There are several different steroids that can be used in very small doses for treatment, but if the dose is right, you shouldn't have side effects. Your chances of conceiving are very good!
