Congenital Adrenal Hyperplasia

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re: re: re: End of this path...TO KAT
Dec. 19th, 2007   9:35am

Hi Kat -

I haven't been on here in a long time and just happened to pull this up today and read your post.  I just wanted to say that you are "one of my favorites" on this site as you always seemed to have  great info, explainations, etc. and even though you haven't been able to get to the bottom of your daughter's issues, you have helped MANY along your path to find your own answers.  For that I thank you.

If you remember, last year this time we were in the newly diagnosed phase with my son (now 7) and you were so helpful.  We went the route of going to Dr New and had my daughter checked as well.  We are now back under full time care of our endo here in TX and all is going well.  My son is holding steady and is doing well on his cortef.  He has issues from time to time when he gets too worn out - we suffer with having to stress dose him as he will go downhill fast with headache, stomach ache, vomitting  - all with no apparent "cause" other than too much activity and not enough sleep.  Even though that can be a bit scary, we consider ourselves lucky to not have to be dealing with something more devastating.  He is a trooper and we have all learned so much in the past year about how his body needs to be treated.   He is also on GH - got that approved and he has been on daily shots for about 4 months now.   Just thought you might be interested in this update......

My thoughts and prayers are with you and your daughter.  I pray you find the answers you seek. In the meanwhile, may God watch over you both.

Happy Holidays, Kat.  You have a special place in a lot of "strangers" hearts. 

Valerie

 

 

 

Valerie




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