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Hi, I am new to these boards and have been reading as much as I can to learn about this whole LOCAH thing as I can. My daughter who is 17yrs of age has just been diagnosed with this CAH and I am trying to get a grip on it. The doctors put her on dex once a day. She and I both have anxiety issues so this is one of the hardest things for the both of us. Neither one of us likes hospitals, drs., or blood. You should seen us both when she had to go through this whole testing thing. It's awful. My palms get sweaty just thinking about it. I just wanted to know is anxiety one of the symptoms of this? or is this something that comes from treatment? so could hers get worse? I don't know this whole thing scares me with the adrenial crisis thing. Is it worth for her to be treated for this CAH? What would happen if she doesn't get treated? Would she just have the weight, hair, and infertility or is there a chance there may be serious side effects. Don't get me wrong - I love my daughter and would not want anything bad - little or small - to happen to her, but I don't want to put her into any harm either. If treating her for this illness makes her more prone to other serious side effects then why are we doing it? My main concern is her health and well being. She is my angel and if anything would happen to her because of this I don't know what I would do. I would blame myself for treating her for something that was not deadly to begin with. You know what I mean. I am reading a lot of things and there are people who are living with this and are not being treated. What is the treatment for? her health or just her well being to have kids someday, which she told me she does not want because she never wants to get a IV.
I don't know I am just a confused and scared parent who is trying to find the best for my baby.
Thanks for letting me vent and cry on your shoulders.
