Congenital Adrenal Hyperplasia

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re: Need a doctor that can treat NCCAH and "carriers"!
Mar. 6th, 2008   10:19pm

I have a son w/salt wasting CAH.  I have had symptoms for years and years.  I was diagnosed with chronic fatigue before he was even born.  My morning cortisols are always on the low end of normal.  I just had a ACTH test and am now on cortef for life.  You need to see an endocrinologist who is willing to do the ACTH test....

I loved OHSU in Oregon and I am from Alaska.

Heatheer




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