Congenital Adrenal Hyperplasia

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re: re: Bone Age Advanced then Normal
Mar. 17th, 2008   5:57pm

Using simple arithmetic, it would not be possible for your daughter to catch up 2 1/2 years in only one year.  If her bone age was 12 1/2 when she was 10, and stayed the same she would be only 1 1/2 years advanced now, which would be good progress but it would be impossible for any more improvement than that.  What has probably happened is that different doctors read the 2 bone ages.  It is really important that the same person, preferably the pediatric endo reads both x-rays.  Sometimes the doctors don't bother and they just take what the radiologist says.  Different radiologists can come up with different estimates - it's more of an art than a science.  And they're not as accurate as a pediatric endo.  Ask your doctor to take both x-rays and compare them.  Maybe he or she didn't read it last time and that one was wrong.  It would be unfortunate if your daughter has been taking a drug based on an inaccurate x-ray although it's a pretty harmless drug.

I went through this whole scenario.  Every doctor will come up with a different estimate.  The important thing is to know if progress is being made so you know if the treatment is working.  I wouldn't stop the Lupron.  If it's working keep doing it.

 

bonnie




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