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re: re: re: re: re: Can this be late onset CAH? Mar. 24th, 2008 5:12pm
Stephanie,
So sorry you had an uneventful appointment. I too have become disenchanted with, and frankly have lost most of my respect for doctors during this process. During your search for a new doc, you might want to try contacting Kelly Leight with the Cares Foundation (just click on the fold down tab on the right hand corner of this board). She may have some names of good endos in your area. You are not "crazy". There are so many of us out there who have similar symptoms with no answers. I too believe strongly that I may have a form of LOCAH. You would think with symptoms alone (not to mention family history) that you could get the correct testing done. Doctors (and others) will tell you that 90 percent of CAH and LOCAH cases are due to 21 hydroxylase deficiency, but come on....if they don't screen for the rarer forms, how can they claim that people don't have it? If you don't screen for it, of course you can't report it, and the statistics reflect that.
Hopefully some others will respond to your post and give you some more advice as well.
