Congenital Adrenal Hyperplasia

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Getting doctors to prescribe steriods
Apr. 17th, 2008   8:25pm

Hello all,

I'm very frustrated. I used to take dex for my NCAH, but I stopped after a year because I wasn't noticing much improvement. I've since moved to a new area and want to try steriod treatment again. The first endo I saw told me he never prescribes steriods for NCAH. I got another referral and was pretty much told the same thing by the second doctor. (He said 'the cure is worse than the disease.') I have another appointment in two weeks because he wanted to do a Cortrosyn stimulation test to be sure about the diagnosis. As with the last endo, their main suggestion is that I lose weight to help with my symptoms (I'm currently about 50 pounds above a healthy weight).

At this point, I wonder if it would just be easier to ask for a spiro script. Have any of you had luck convincing skeptical doctors that steriods are the appropriate treatment? Because of wait times, this whole thing has drug on for four months now and I don't have the energy to get yet another referral to a doctor who may or may not agree with my medication choice.

Also, I'd love to hear people's experiences with steriods: what symptoms improved and what side effects they experienced.

Thanks!

Louise

 

 

Louise




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