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Hi there, and suffering now, treated with Dex .5mg nightly more than ever before, and finally just got to a different doctor -- where I will be tapering off and then stopping it. I also have a whole host of other progressively worse symptoms treated ( a la Cushingoid). However, one reason I was started up by the first doctor years ago with the Dex is that I complained of being very Tired ("with a capital T"). I got the feeling that even once I stop the Dex, the "tired" has little to do with the LOCAH. I was curious, Natalie, you mentioned struggle with fatigue for many years "along with the regular symptoms of LOCAH." What is the story-- is the fatigue more acknowledged among those who have the LOCAH and yet not officially recognized as a symptom? I feel I need something to combat this and have no idea, even once my severe fatigue resolves, I hope, that I will still be tired, lacking energy. I can't afford to live like that.
