Hi Lindsay,
Genetic testing and counseling is always recommended after a LOCAH diagnosis. It's entirely up to you but your endo should have told you to get counseling as this is the proper protocol. My endo told me that if two parents are carriers, the child has a 95 percent probability of having LOCAH.
Your 19 month old may develop symptoms of LOCAH later on in life like at puberty and if you test her now, at least you won't be surprised if and when it happens. Another thing is your husband could also have LOCAH. This would put your children at a greater risk of having the disorder. Any children you plan on having later on could be blessed not to have it at all or they could have the severe form which you would want to prevent if possible.
I carry a severe mutation (Exon 7) and a mild mutation (Intron 2) and so I definitely will need to get further counseling if I decide have children. My husband will have to also to make sure that he is not a carrier or does not actually have LOCAH.
