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re: Are there any other men with congenital adrenal hyperplasia? Jul. 8th, 2008 3:53pm
The common growth evident in males with CAH that have been poorly controlled is a testicular adrenal rest tumour. These are harmless and benign, and are the result of poor treatment. They often vanish over time with correct dosage, and it is something to be aware of given the medical history of your husband.
I don't know of any adrenal growths as a result of poor treatment, but that's not to say there aren't any linked! I don't know if you are US or UK based (or maybe neither!), but I would suggest contacting one of the relevant support groups if you are after more indepth, official information. US - www.caresfoundation.org UK - www.livingwithcah.com
