Snowflake,
The people who knew about the my son's condition in the beginning know all about it--grandparents, cousins, friends.
I have told co-workers and my boss because once in a while I have to be late for work because of blood tests, or I have to leave early to get to endo appts.
People who ask about his medical alert bracelet are given a short answer about an adrenal gland issue. Most people don't know what the adrenal gland is so they are satisfied.
I have told close family friends at length about it because they are very curious and as Syrita said, ask out of concern. I remember holding a little unplanned Q&A session after Thanksgiving dinner. All the friends of my parents were firing questions at me. I impressed myself by answering all of them.
I think it is maybe different for girls who have CAH. I may not be as forthcoming with my answers if I had a girl because I would want to safeguard her privacy a little more--maybe not so much when she was a baby, but as she got older. I would not want her school friends or their parents looking up CAH on the internet and reading sensational material about the condition.
Eden
