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I have 2 daughters, my 2nd has cah. She was diagnosed after birth (after we had thought we had had a boy) and was transferred to the childrens hospital. Before she was transferred though, she had breastfed beautifully 3 times with absolutely no problems. She was taken to the hospital (where she stayed 5 days) and I was able to be with her 5 hours later. I tried to feed her as soon as I got there, but she wanted NOTHING to do with breastfeeding. The dr's told me that she needed something, so they pretty much forced me to give her a bottle....I'm not sure what happened but for the next 4 months, we struggled to get her to eat anything by breast or bottle. We struggled to get her to take the salt supplement without spitting everything up afterwards. I was afraid to mix the salt and med's with my milk because I didn't want her to associate the bad taste with my milk. We do like most of the others here..crush the pill in a syringe and then mix with water. I'm not sure what happened, but she after awhile, she gave in and she was a wonderful little nurser and continued to breastfeed until she was 2 1/2yo. I believe in breastfeeding kids for a little longer than the average person, especially our cah babies because it can help them not get sick as often or as severe and I think that's one thing that we can do to really help them out. I am so thankful that I stuck with it in those first VERY DIFFICULT months, it was definitley worth it in the long run. I don't mean to scare you, but I just wanted to tell you my experience...I considered myself very knowledgeable about bfing (I was still nursing my 1st dd when my 2nd was born) so I couldn't believe that I was having the problems that I had. Find support BEFORE you need it. Find a LLL group, a Lactation consultant, a IBCLC...SOMEONE that you can call in the middle of the night if you're having problems (I wish I had that when my first was born)...it's so easy to give up when you're having problems, but if you have someone to give advice & support you, it's easier to keep going.
sorry this is so rambled...I am sooo tired! I really hope you and your family the best of luck. My daughter is 3yo now, cah is just a part of our lives. It might be, probably will be, difficult in the beginning, but you do get used to everything! Enjoy the rest of your pregnancy!
