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I have SWCAH. My son, 4 yr old Nolan, is very healthy. Only been sick 2ice in his life. I take him to a ped. endo., though, just in case. His yearly checkup was yesterday. Dr wants him tested for late onset. He (dr) seems to think he has it, since I have the 2 defective genes. I'm scared to death. I don't want to have passed this crap on to that innocent little guy! Any words of comfort out there? --And does this mean Nolan's father has a defective gene also, or are my 2 enough to pass it to him?