Congenital Adrenal Hyperplasia

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re: 2 year old swcah with high blood pressure and new dx
Feb. 1st, 2008   2:04am

my 2 year old daughter with swcah was dx with very high blood about 9months ago and after all test were done the doctor could not find out why but said to come back in 6 months to do the test again.  the doctor said if its tumors it could take awhile to show up so we went back for more testing and this time the 24hour unrine test did not come back as good.  she is going for a nuclear test called MIBG on her adrenal gland from my understanding to find the tumors.  has anyone else gone through this or ever heard of this?

worried mom

sally




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