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Hi! I believe we gave birth to our beautiful baby girls about the same time. My baby girl is now going 10 months. She was born last May 2007. While most of the new mothers in the maternity ward are rejoicing for the birth of their new baby, I was crying. I was a very difficult time. Like you, my husband and I have never heard of CAH till our baby was diagnosed by it. We felt so alone in the rarity of this condition. I know what you're going through because this is what I'm going through too. It's a tough battle. I used to be weak and close to surrendering but now I'm determined to be strong for my baby girl. I hope you are too. Would love to talk with you. Take care!