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re: re: re: WILL SOMEONE HELP ME WITH THIS WHOLE BONE THING BOUT TO GO CRAZY!!!! Mar. 12th, 2008 10:12pm
i JUST WANT TO THANK ALL OF YOU FOR THE WONDERFUL ADVICE AND TIME THAT YOU HAVE GIVEN TO ME. I guess this is something I will have to come to terms with but I just think this will take time. I am not use to this. As I said I thought I knew alot because I had 5 years of dealing with this with my son. But then came my daughter. And it seems like one thing after another is just being throwed at me. I thought I was going to brake down when they did her surgery. I cried so much the nurse stayed with me after her shift was over while I was waiting on word that she was ok. I have never seen a hospital so concerned about the family as well as the child. I see the endo tomorrow and I have a list of questions for him. I wrote them down. The only thing that bothers me is when I do ask him some questions he says to me " you worry too much" Then I feel like I am never getting any answers. I am afraid to change his endo because I have never known anyone else. and it's like this dr saved my sons life when he was born and has been there ever since. Also I was afraid of this bone thing with my daughter because why does she have to have it but my son is 5 and never did?? And I heard about that medication that they give and I also heard after taking it for awhile your body can become resistent to it and you have to stop it. You all are wonderful people. Just to take the time out to answer my questions. I love this board and often come on it just to read and try to take in anything I can. I never really write anything but this time this thing had me so scared I felt I had no one else to turn too. You all seem like you have great advice and I thought maybe you could let me in on some. I know there are people who have children and feel the same as me. I just want what is best for my children and I want to do whatever it takes to keep them safe and here with me. I dont want them to die I dont think I could handle it if something like that ever happened. Maybe that sounds selfish but they are my life. Thank you all once again. I will keep praying for your familys as I always do when I read your stories on here. Please pray for my children as well. Thank you thank you thank you!!!
P.s. does anyone have younger children with cah and have older children as well?? If so how do you spend that extra time with your older ones and not feel like you have to be with the ones that have this disease. My two older girls help me out alot with them but I think sometimes they miss that time with mom and I worry that I cant be without my younger ones because something might happen. and even when were at home it seems all my attention is with my two younger ones.
