Congenital Adrenal Hyperplasia

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re: re: re: new parent of SWCAH girl
Mar. 13th, 2008   2:31am
Hi congratulations on your little girl, i have 2 SWCAH daughters and they are 9yrs & 12 yrs both have had a good run, the worst is the first 12mths after that you start to get a handle on things  but you are constantly learning new things its great advise to check in on this websit, also weve had great endos they are very kid friendly my girls dont worry about giving blood  because they are so use to it they watch everything but i cant blood makes me feel weak but they are strong and handle it were very proud of them you may find yourself worrying about little things but that is what makes a good parent, my girls have done just about every sport known to mankind so we dont stop them from having a normal life, my eldest went on a school excursion to Canberra from Swansea for 4 days without us and that was nerve racking for us but great fun for her, we found out that ambo's could not inject the cortisone so we put her on a registar so that in case of an emergency they could inject her it was easier than we thought so it took us 11yrs to find out that as i said before you will be constantly learning new things good luck with your little girl.
barbara




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