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Hi- I am wondering if anyone has heard of this. I was diagnosed a long time ago with late onset 3 beta HSD, but recently got genetic testing that didn't identify a mutation. New research says that my adrenal issue stems from the ovaries (a form of PCOS?). After stopping treatment for 3beta (.25 dex), I had 3 episodes over 5 years of adrenal insufficiency (not total shutdown/crisis, but enough to land me in the hospital). I then was diagnosed with chronic Lyme Disease and while getting treatment for it, have had salt wasting (partch shock waking I call it) crises. Only while sleeping, I am being woken up by severe acute bouts of dehydration (tingling/numbness in arms, legs and head), dry mouth, eye, throat. Water helps. Anyway I was just placed on hydrocortisone (5, 2.5, 2.5). I am wondering if anyone would have any information on how I can get this (what I think is cerebral salt wasting) under control, so that I can take treatment for the Lyme. Does anyone know of a doctor who might treat this in northern NJ or NYC? Thanks so much-Tracy
