Congenital Adrenal Hyperplasia

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re: re: Update and More Questions about Kindergarden
Mar. 24th, 2008   12:52pm

Hi Sherry,

I remember when my daughter when to kindergarten too.  SHe is now almost 9 (tomorrow is her birthday) and things have gotten a lot easier.  After we registered for kindergarten the school nurse contacted me and we set up a meeting with her, my daughter's teachers, the school Health aide secretary (who gives my daughter her noon meds) and myself, before school started in the fall.  At that meeting I gave them  all the info I could on SWCAH.  First, I typed out very specific instructions for her teachers like what to do in every situation (fever 99-101, 101-104, vomiting, diahrea, sprain, head injury, overheating, etc).  I also gave them a copy of an explanation of what an adrenal crisis is, what it looks like and what to do about it.  I always prefaced everything with call the parents before following any treatment.  Since the school nurse is only at her school for a few days a week, I don't have school giving her the Solu-Cortef shot.  They will call 911 and the paramedics will give her a shot of Solu-Medrol (they don't have solu-Cortef).  I also have a letter written from her endo giving the right dosage of solu-medrol and other info.

I hope this helps a little. 

 

Laurel




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