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Ask your doctor for a copy of her last bloodwork and then call our office. We can teach you how to read the test results. For example, 17 OHP should NOT be in the normal range. It should be somewhat elevated--typically between 200-1000 ng/dl on a morning draw after meds. Testosterone and androstendione should be in the normal range (not below) but it can be at the high end. Renin should be normal. Your daughter should be growing normally and staying on the same curve of the growth chart, not dropping. Puffy chipmunk cheeks can be a sign of oversuppression, but with little kids it is hard to tell because many kids who are not on steroids have puffy cheeks. You have to be an educated consumer with the kids' monitoring. Always ask for a copy of the bloodwork and make sure you read Carol Hsu's book, A Parent's Guide to CAH, available on Amazon. Being well educated about CAH improves overall results.
Kelly R. Leight President and CEO CARES Foundation, Inc. (Congenital Adrenal hyperplasia Research, Education and Support) 2414 Morris Ave., Suite 110 Union, NJ 07083 Office: (973) 912-3895 Toll free: (866) 227-3737 Fax: (973) 912-8990 Email: kelly@caresfoundation.org Website: www.caresfoundation.org Disclaimer: Any communication from CARES Foundation, Inc. is intended for informational and educational purposes only and in no way should be taken to be the provision or practice of medical, nursing or professional health-care advice or services. The information should not be considered complete or exhaustive and should not be used in place of the visit, call, consultation or advice of your physician or other health-care provider. You should not use the information in this or any CARES Foundation, Inc. communication to diagnose or treat CAH or any other disorder without first consulting with your physician or healthcare provider. Any referral to physicians is provided as a courtesy only.
