Congenital Adrenal Hyperplasia

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re: re: mike / kathy
Apr. 22nd, 2008   11:15pm

Yes, in my case it is. They did not know I had it till 6th grade and I was in the hospital close to a month. I have one of the rarest. 17 hydroxylase deficiency.

Instead of it affecting my outer organs, it affected my uterus and ovaries,(I have none).Both my parents (as in all cases) carry the gene.

I look back now at all the symptoms I had. High blood pressure, bad nosebleeds in the middle of the night and during the day, extremely tired at night and could barely drag myself out of bed to go to the bathroom. I think this is also why I wet the bed for so long. I couldn't wake myself up. Now I am a VERY light sleeper, ever since I've been on the cortef.

They tried a salt free diet when I was in the hospital and sent me home, that was the worst thing ever to eat that kind of food, then they put me on salt tablets, and with a whole battery of tests back in the mid 70's,(dye in the arm) to see my kidneys and adrenals they found it.

 

kathy

kathy




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