ATTENTION MEDIA & OTHERS SEEKING INTERVIEWS!
If you represent a media company, are a student writing a report or anyone interested in interviewing our visitors, please seek permission (see email address at the bottom of the page) before posting your requests or emailing solicitations for any talk show, magazine, thesis, census or other interview on any message board on this site. If not, your posts WILL be removed. Please respect the privacy of our members.
Not sure if you're still checking this, but I have a 7 month old daughter with SWCAH. I had the same experience with trying to get salt in. Getting the salt in was actually I think the most emotional part of the first few months. We finally found something that works. Our endo prescribes us sodium chloride (basically salt water). We mix 1 mg (1 of our syringes) with 1 mg of breastmilk and 1/8 tsp. of sugar. For awhile she was at 5 mg of sodium chloride per day. We picked up the solo cups (restaurants/cafeterias often put the side of salad dressing in) and each morning I mix up the batch for the day. This way I don't have to keep mixing it. I learned while nursing her to hear the sound of her swallowing (it's a small clicking type of sound). Right when she falls asleep I actually give it to her. We have one of those pacifiers they give in the hospital (you know the big round ones with the hole in the middle you can look in). They taught us at the hospital to give her the meds with a small syringe in the side of her pacifier as she sucks on it. I try to give her just a little at a time & listen to hear that she has swallowed before adding more. Sometimes she wakes up gagging/coughing if it gets too much, but this is still preferable to the battles of her crying while trying to give it while she was awake. The endo said this process while she's sleeping is fine, as swallowing is a reflex. Hope this helps!
