I just recently had my twin boys blood work done. And their OHP 17 levels were off the charts, 10,000 and 16,000. They are 16 and 6 foot 2 SWCAH. No problems with height. No problems with management over all. We had a small bump when they were 11 with levels, but over all nothing eventful.  Their ACTH levels and salt, were within normal levels. But some of the studies say their is a coralation with High OHP 17 levels and Testicular Adreanal Rest Tumors.

How many Dr's are doing  routine ultrasounds?

Does anyone have experience with TARTS in their children? Or adults with TARTS? Any problems with fertility?

Thank you,

Kathryn