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I too Michelle sometimes feel depressed about what my 4 yr old swcah daughter and 2 yr old swcah son will have to endure in their years to come. There's so much negative stuff out there about CAH that I'm scared that once they (especially my daughter) starts doing research about their disorder what impact it will have on their self esteem. I am currently pregnant with my 3rd child and pray that this child will not have to endure the future pain that my first 2 will. At least they have each other. Right now, my 4 year old is a beautiful, energetic child who thinks nothing different about having to take "yum yums" and visiting the doctor for blood work. I had to take her a few weeks ago for a urology appointment for a follow up to her surgery she had at the age of 6 months and struggled with what to tell her about why this doctor was going to be looking at her bottom. I decided to be honest with her and make it sound like it was no big deal. She knows that kids have surgery for all types of problems and that everybody is special and is different. I truly hope that in times of doubt she, like I do, will lean on the Lord for guidance and support. CAH does NOT make her who she is! and I hope I can instill this in her. She is not any different than any of her friends. Try not to let CAH rule your life or your daughter's life. God would not have given us these children if he didn't think we would be the best ones to raise them.
