Michelle, I do understand where you are coming from BUT try to look at it differently in the respect that you should be grateful that the people who post on this board tell the truth, discuss the problems they have faced through poor treatment. Yes, some people with CAH do suffer, if they didn't then there wouldn't be need for a board like this.
Rather than feel sad, be positive and use this very valuable information to prevent these problems occurring with your daughter, by knowing what to look out for. You soon learn whose posts to avoid reading!
This board has saved lives and if it hadn't been for the parents discussing problems eg. with the liquid hydrocortisone several years ago, many more children would have suffered. It was through the power of these parents, discussing this, that the liquid at the time was tested and withdrawn.
Your choice but I would rather know what to look out for and be warned so I can prevent problems. I want the truth, I want to learn as much as I can from others, I want to prevent the pitfalls, so that in the future I will not be sad, depressed and guilty because I things I didn't know about happen and my child suffer because of it, when it could have been prevented and is then too late to fix!!!
I thank everyone for posting their problems on here, I have learnt a lot and I will always be grateful for these lessons. Again, I would rather know than not know, so I know what to look out for, these problems may never happen as everyone is different but I am at least aware. Doctors too are learning from these postings.
Many teenagers who do not have CAH do not 'fit in' for different reasons, there is no reason to think your daughter will have these problems, she obviously has a very devoted mother but in reality life isn't easy and having a lifelong medical condition, is hard.
