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Return to Page 8Post reply
re: re: long term prognosis
May. 9th, 2008 9:19am
WOW, each post had something good to offer you. Just as Rick said, this is a support board and what usually brings people to a support board is usually people who are seeking help for a problem. It doesn't mean it is a bad thing, it just means expect to hear mostly concerns people have or have been through. Think about it. Have you ever seeked out support to help you through a terrific day you are having? So consider that. Look at a support board for anything. For example, newborns. God if I read a support board for newborns or new mommies before I had a new born, I would consider permanent birth control! I am sure the questions are: " Why is my child spitting up, or why is my newborn not sleeping through the night, and so on. Not a pretty picture of newborns now is it? So consider the fact when you seek out a support board, most will be filled with people seeking solutions to their problems. And that is ok because THAT is what it is aaaalllll about. Like one other poster said, take what you need from all the experiences you read and learn from them. Don't dwell on them. You can make yourself CRAZY with the what ifs. That is without CAH. What IF, my child was in a car accident? What IF, and the list can go on and on. When I first started reading this board when my daughter was 2, (she is almost 11) I would leave crying. I was scared to death. But then I realized as my own time went by that we CAN do this CAH thing, and not every single thing that happened to someone else happened to us. I took all those scary experiences and filed them under my belt to better prepare me IF those times ever arised. And they have helped in HUGE ways. We all have our down days about CAH. Mine was last week. But I worked through it. You say this sucks, I hate it, but lets deal with it and then move on. I always say valadate those feelings. Don't stuff them down and try to avoid them. We all need those days to blow off some steam or tears of worry. BUT, make sure you move on. Also think of this. EVERYONE has something. Anon touched base with that idea and reminded me of what I told my daughter when she first asked about CAH. I told her this. "Everyone has something. Your aunt was born needing glasses to see. Some are born needing wheelchairs to "walk", diabetics need insulin and so on. Not every body is perfect. YOU are born needing a pill to replace what your body cannot make. It is that simple. You are not alone, EVERYONE has something to deal with. The difference will be.....how you choose to deal with it. What is the long term prognosis? You are going to have some sucky days. You are going to curse the word CAH, and all that goes with it. Then you are going to move on. But in between those days, you are going to live a normal life. You are going to watch the sun rise, and hear the birds chirp and enjoy your life with your daughter. You will help her through those good times and bad times. It is what we do as moms. With or without CAH, there will be good times and bad. Like I said above. The difference will be....how you choose to deal with it.
Laura
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