Congenital Adrenal Hyperplasia

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re: to Anon2
May. 11th, 2008   1:03pm
I think you have totally misunderstood both my posts.
 
My second was to 'Kelly' asked out of interest because I did not fully understand her message. It came across that her daughter HAS to do these things because she has CAH, and pay back because she is doing so well but Kelly who did not get offended, was happy to explain.  It is wonderful that she and her family are involved in community service.
I am medically trained and have done a lot of work in psychology, and believe it is totally unrealistic to expect a child not to have some issues/problems with having a life long medical condition, so it is part of  human nature, to sometimes feel down about things.  It is very interesting to read how people deal with this, as often if you do not allow your child to vent these feelings or show understanding and empathise, they may rebel in later life. I don't actually remember or even discussing the good work Kelly has done, or being critical toward her, that was not the topic and most certainly not disputed.
 
As for what I wrote to Michelle, I feel my comments were very positive, (Kelly too, suggested learn as much as you can),  to prevent the problems that do exist, not to avoid things that we don't like to hear and with knowledge you can prevent them saving much heartache in the years to come.
 
I am sorry if you were offended by my post, however, I stand by what I say! Burying your head in the sand and not wanting to face problems that may happen, is not best for your child - read, learn and prevent. DO not become depressed by what you read but use it as a tool, in a positive way, to prevent problems in future life. I made this very mistake and would not wish the problems we experienced on anyone and because I CARE, I do not want others to say like I did, if only I had known. We all know that with good treatment you can live a normal full life, this was not about wrapping your children in cotton wool, this was about getting the best treatment with the best possible outcome.
Anon




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