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i am really scared everytime i read something new about cah and what is to come, i have 3 girls the older 2 are 3 and 4 and are fine my youngest is 3 months and has swcah... i am so scared i think something is going to happen too her and i wont know what to do or i will panick if she becomes ill.
How will i ever cope with additional medication... i feel lost and alone i read your stories and opinions and think you are very brave.........but still feel isolated i just want my baby to grow normally and a full life....how will that be possible with so much meds........will she resent me as she gets older.
