my youngest daughter is 3 months old and was diagnosed with having swcah 4 days after she was born. I had never heard of or been aware of any such illness/ condition.
I am at the moment a very concerned and to a large extent scared parent. I dont know what to expect....will my baby grow normal, i am reassured by my endo, but after everything i read i feel a sense of despair........ my endo says that the medication is just replacing what should naturally be in hopes body therefore she should not suffer from side effects.....i now after doing my own research find this explanation to be very basic.
My main fear is that if she gets ill i will panick or i wont know if she is sick or i will miss the signs i dont know im confused.
i love my hope she is beautiful, i look at her beaming smile and wide eyes and think i hope she could just stay that way,have a smile just for me and never be exposed to the horrible taunting world who may one day laugh and mock my unnocent daughter who has a condition through no fault of hers.
i hope god gives me strentgh to protect her from eveything .
Can anyone ease my mind
