Congenital Adrenal Hyperplasia

ATTENTION MEDIA & OTHERS SEEKING INTERVIEWS! 
If you represent a media company, are a student writing a report or anyone interested in interviewing our visitors, please seek permission (see email address at the bottom of the page) before posting your requests or emailing solicitations for any talk show, magazine, thesis, census or other interview on any message board on this site. If not, your posts WILL be removed. Please respect the privacy of our members.

    Return to Page 8Post reply       


re: re: re: re: my child with cah
Jun. 20th, 2008   1:07pm

Thankyou all so much for your advices and concerns, i cannot thank you enough.....As a mother like most mothers i worry about all three of my girls i love them all but Hope is truely special and will always hold a special place in my heart.

Regarding the ambigious gentilia.......this is one of the reasons i am so scared to tell anyone that my baby has this condition.....i could deal explaining adrenal insuffiency but i feel, maybe wrongly maybe rightly that friends and family will label or look at my baby differently and will never be able to go past the fact that she looks different.

In all honesty i must confess that it kills me to see her like this i just want her to look normal i have an appointment next month to see a surgeon, for the corrective surgery but my endo has explained that he will not perform any surgery until she is at least one. Even this aspect scares me, after all i read about how this surgery sometimes does more worse than good......god help my baby and give me courage....

im sorry if i am going on,,,i think i an thinking and typing i feel all over the place.

Thankyou for giving me your email addresses it is good to know that i can get in touch with others in the same situation.

Can anyone give me any advise on the surgery,, i am so desperate to have it done but i dont want hope to have any adverse effects or blame me when she is older.

sarah




    Return to Page 8Post reply       


This Thread





- Post a reply - 

page processed in 0.505257129669 seconds
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks