Hey this is a very scary time for a mother as I know. My SWCAH daughter is now 8 years old!! I had her surgery done at 9 months old. She looks perfectly normal down there but of course I was told that they couldn't tell me 100% that she would feel normal sensation. This is the way I looked at the situation but not everyone would agree. Children can be very mean and if I wanted her to live as much as a normal life as she could then this was no option. kids learn from a very early age how a female and male should look. My daughter is 8 like I said above and the only thing I have discussed with her is the part that her Adrenal Glands don't work as they should and she has never asked anything about her bottom. i plan on tell her when she is old enough to grasp what was done and why. Where are you located? The surgery outcome depends on your Urologist. I had a well know Urologist out of Cincinnati, Ohio perform my daughters and I wouldn't change a thing.
P.S i don't know if you had read the post on Mother's day but here is a poem that is posted every year. This is a long and hard battle but when you see your child hitting mile stones it's all worth it!!!
For the mom who mourned the loss of having a healthy child at birth. To later realize a child with a medical handicap is even more of a special blessing than any healthy child she could have ever had. This one is for you.
For the mom that beat her self up feeling she failed her newborn in some way wondering what she did wrong during her pregnancy that caused their CAH. For her to later find out there was nothing she did intentionally to cause CAH and find that forgiveness in her infant's smiling eyes. This one is for you.
For the mom that realized the true meaning of motherhood, the first time they watched their infant have blood drawn. For her to later realize, what doesn't kill them makes them stronger. This one is for you.
For the mom that chose to grow their child in their hearts instead of their womb and adopt a child with CAH, not only once but twice. This one is for you.
For the grandmother that lovingly opened her home and restarted her life with her grandchild, this one is for you.
For the mother that learned and educated herself in the CAH world of the unknown, and found that knowledge is power over CAH. This one is for you.
For the mother who discovered her daughter had CAH, and decided the world needed to be more educated so she formed a foundation to care. This one is for you.
For the mother that hears, "Mommy, I don't feel good." and have it cause her heart to skip a beat. This one is for you.
For the mother that sits by her sleeping child's bedside and prays and watches them battle a high fever or virus. This one is for you.
For the mother that grieved for their child that was taken back to heaven. This one is for you.
For the mother that had to answer the hard questions CAH has to offer. This one is for you.
For the mother that anguished over the choice to have surgery for their daughter or not. To later find out their daughter grew up healthy and happy for the choice they made for them. This one is for you.
For the mother that had to let her child go to that first day of school or daycare even though they had many fearful thoughts that no one could care for their child like they could. To later find out they could. This one is for you.
For the mother that knows letting her children with CAH live normal lives without sheltering them is healthy and makes them stronger. This one is for you.
For the mothers in the past that lost their children because there was either no newborn screening, or any kind of treatment to sustain their lives like we have today. This one is for you.
For the mother today that has their children today because of newborn screening, and a medical treatment that helps their children with CAH lead normal healthy lives today. This one is for you.
For the mother that questioned her faith because her child was diagnosed with CAH. To later find out that it brought her closer to her faith instead. This one is for you.
For the mother that dreams of a cure for CAH, and have faith it will come. This one is for you.
For the mother that celebrates good blood work results, weight and height gains or losses for their children, and perfect bone age results. This one is for you.
For the mother that has to give that last Lupron shot. This one is for you.
For the mother that gives the growth hormone shots to her son as she wonders if it is all worth it. To later see him grin as he measures his height and sees he is taller than the kid next to him. This one is for you.
For the mother that finds the courage to give that Solu-Cortef shot. To later find out it not only made them feel better but it saved their lives. This one is for you.
For all the things I could go on and on about being a mother that has a child with CAH. This one is for you. Why? Because you are special. You have endured this battle against CAH and have won. Remember that knowledge is power. Our children rely on us to have that power. Happy Mothers day everyone. God bless!
