Thankyou so much for posting that beautiful poem, it has made me cry but is so true to how i and maybe all mums with children that have cah or any other condition go through and feel.. i cannot thank you enough.
It is hard to remember to think positive sometimes but my daughters smile keeps me going......all i can think is at times is why me and my baby....i know that sounds silly as i have researched and tried my best to get round all the cah jargon in the last three months, so i know why and i know why she effected.
What is possibly the strangest feeling for me is that my other 2 children are not affected by the condition, i love them dearly with all my heart...although i do confess that they drive me crazy sometimes with all the questions and all the.. i want to do this, she wont play with me and i had that first, ofcourse all normal growing up things and very healthy sibling rivalry and absolute unconditional love for each other. My youngest with cah holds a very special place in my heart, i pray for her all the time...i find myself question god yet thank him as i am still blessed and if i am chosen to take care, nurture this bundle of joy so be it. I am petrified of the thought and cry even thinking about her being ill, or anthing happening too her. I suppose all this is natural motherely instinct but she is special at least for me.
I live in England,UK....i have been advised by the endo and doctor that the surgeon is excellent.......but still cant help but think what if something goes wrong, will i be subjecting my baby to more bad than good...time will tell.
Thankyou once again for the beautiful poem and your kind thoughts .
