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re: re: re: my story (kind of long)---to Alexis Jun. 26th, 2008 5:09pm
I am glad you found a place to come and bounce this off of someone. I found this website when my daughter was 2, and it made a world of difference. CAH isn't like Diabetes, that EVERYONE knows that condition so it is very hard to find someone to talk to about CAH. So when I found this website it opened a whole new world for me and my family. It will for you too. You are not alone. DEFINATELY make sure you are diagnosed before ANY surgery. During surgery a Solu Cortef drip is required so you don't go into an adrenal crisis. Please please please, contact CARES Foundation located on the corner of this page. They can direct you and educate you in this disease. It is liveable, and treatable. But you have lived without medication all your life so I can't imagine how you feel or have been feeling. Mentally and physically. And thank God you lived to tell us your story. Do your children have any signs of CAH? How are their growth? How tall are you? Growth is a big red flag. It is storming here so I must log off before I get zapped by lighting. Talk more later.
