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To Sandra in Prince George Jul. 30th, 2008 11:38am
Hello there! I don't think I realized that there was anyone else here that went to Children's in Vancouver! Our first son was born and diagnosed there, too. As I mentioned, we see Dr. Stock now, mostly because she travels to US, and we don't have to make the trip to Vancouver (well OK ... and because we love her!)
When we were part of the Children's community there with our first son, many years ago, they had a families' group for CAH kids (I think they'd get together every summer for a BBQ, maybe facilitated pen pals, that sort of thing), and I was wondering if you know if anything like that still exists? My daughter will be 11 in a few weeks, and she's starting to want to meet other CAH kids like herself; I think she's looking for a little reassurance about going through puberty with CAH and life in general!
Wow .... four year old twins, huh?! ; ) That must keep you busy! Have a great summer!
