ATTENTION MEDIA & OTHERS SEEKING INTERVIEWS!
If you represent a media company, are a student writing a report or anyone interested in interviewing our visitors, please seek permission (see email address at the bottom of the page) before posting your requests or emailing solicitations for any talk show, magazine, thesis, census or other interview on any message board on this site. If not, your posts WILL be removed. Please respect the privacy of our members.
Having studied IT for 12 months prior to flicking over to my Visual Imaging degree and studied privacy and such online and security as well as web and network security. I'm aware that there is support network software out there that ties all users to commmiting an IP address when they use such support networks, This protects ALL users when using a site and it guarantees they will receive genuine support without malice or posts such as the above, which are superfluous to requirement on such support networks. This is the ONLY type of support network that I would recommend any of my patients if I were a childs Doctor, as I simply would not want my of my paients exposed to fun and games. I'd recommend local support groups instead if such support networks did not exist.
Although in this community has it controversies and some like to post anonymously, that in itself as an option is too rife with possibilities for abuse as I am aware that if anyone wanted to simply protect their identity, it can be done when you create your used ID and can be followed by not passing personal details to people online that you do not trust. Only the owner of the domain can determine the IP address but not the 'identity' of the person. This is how a true support community works in the real world ad people "misbehaving" are open to having membership removed in such cases. Been there done that but learned the good sides to it.
So i is with some disappointment that I find this forum is still run without such support networking security when it has been available for years and is becoming even more so.
As a Doctor or an author I personally wouldn't even want my work "tied" with such an insecure forum with such values. My ethics are that I really would not want my work associated with any body or support network that cannot provide secure, friendly support to all that arrive for it. Perhaps this is why I do not take the suggestion of reading such a book seriously?
It hasn't been recommended by my Doctor and I can see it is being sold on other sites online, but to be honest even if I spent valuable time writing one or creating n educational too, for the reasons above I would not tie it with this site. It somehow doesn't ring as professional to be honest and this is not the only place on the WWW that one can pitch such a book. With good search engine placement, I suspect anyone could create a web page and sell something of that nature after seeing a "screen shot" and a short article intro with apa referencing/
I would like my sons image removed from your database Danny please. I gave it over in good faith that it would never be used or come up on any site that condones the type of behaviour above given that when parents are devastated with the birth of a CAH child, or the death of one or need "real" assistance, unfortunately you have some unsavoury characters stalking with the ability to resort to "put downs" and petty unwarranted comments. Jokey or otherwise, it seems highly out of place and immature within a support environment. I have a right to disassociate my sons image with such forum and I'd like it removed today!
