Congenital Adrenal Hyperplasia

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cannot get the potassium down
Aug. 7th, 2008   7:58pm

Hi.  i have a 3 wk old son who was diagnosed with CAH and have been sturggling to get the potassium under control.  Upon diagnosis, we spent a few days in the ICU and got it under control and it was stable.  Over last 5-6 days, it has continued to increase despite quadrupling the dose.  We are otherwise doing nothing new - the endocrinooligist does seem to have the answer except to incease florinef and we are already at 4 times the usual maximum dose.  Does anyone out ther have any experience with this??  We have thought abotu it and diet has not changed - we have even stopped using lanolin in case it has some K in it.  Please share any thoughts.

stephen




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