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re: re: re: re: Pros and cons of an adult board Aug. 10th, 2008 12:09pm
I think everyone can learn from the adults with CAH, and the adults can learn from the parents with children with CAH. Perhaps just naming the "Controversy Board the "adults with CAH" board would make some more confortable. If you read through the board there are an array of different questions and not many are controversial. What makes it controversial is when people start picking at each other. Which no one can control but themselves. You can have about a billion different board and there still will be people that do not control themselves kindly. It is what it is. I still thought the controversy board was a place to take your controversy threads. Like, Is surgery the best choice? and so on. Before the Controversy board was created by Danny there were threads on this board that were like battles for and against surgery that went on for a couple pages. That is when I remember him coming up with that board. Because I can remember people saying, "I think too much space is being taken up by these arguments that have turned into name calling and such. We want to also ask questions like, on medication and growth issues etc. but all these controversies and arguements take up the space. Therefore, I thought the reason he moved them to begin with was to have a place to hash those kinds of issues out. Not to "hide" the adults with CAH or their problems. How the thought came about as the "hidden" board is something I do not understand. When you have a board called, "Controversy" and you don't want to get into anyone's controversy posts, then I think more do stay away. So perhaps renaming it would help and not make it such "taboo". In labeling it controversy, you have just labeled each post made under that board as a problem. So I think the meaning of the controversy board was lost by the time things panned out. Maybe I am wrong but that is the way I look at it. So we could put them all together, or we could keep them all seperate. Either way you are not giving out secret passwords to enter any of them and if everyone is reading the boards to find out more about CAH, they will. On the adult board or the parents board, or the children's board. This way if the kids want to talk kid stuff, they can on their board. If a parent or an adult with CAH wants to post a reply they can. Being helpful. If an adult finds a question on the parent's board in which they can help and post, they can. So this way if an adult with CAH thinks the topics are all about the parent's feelings as a parent with a child with CAH and their children with CAH, then they have their adult board to chat with eachother about their adult questions or feelings that they think are important. And so on. Aimee wants to name it the coffee shop. Why not name it the adult support group? Coffee shop again, makes it sound like a bad place to visit. Some place that is "nicely named" for controversy. It isn't. It is a place where adults can share their stories and their problems, and whatever with eachother and anyone can come to read them and post if they like. Sorta like a chat room is designed. You wouldn't put a kid in that same chat room, so why not have an adult section. Same with parents. I am sure adults don't want to read about how a parent is worrying about their sick child with CAH. That isn't as important to and adult with CAH. And that is ok. Not that they don't care, it just isn't the support an adult with CAH is looking for. So if you have your own board with adults with CAH you have more in common. Same with parents with children with CAH. And same with kids that have CAH. Most of the kids don't want to hear about our boring parent stuff and most are too young to talk about some of the sexual stuff that the adult board has. So therefore we have a kids board. We don't name it anything other then what it is, the kids board. So what is the problem with renaming the controversy board, the Adult board and erasing the idea that the adult board is controversial and hidden. I think it would open a nice range of learning to know we can go and learn from the adults with CAH, and ask them questions. And then for the adults to read our concerns and help us with our questions. I think it would be great. I guess you have to ask what these boards are for. Do you want them like chat rooms where you can seperate the rooms and have them just hang out with eachother and talk about their concerns as adults, parents, and children, or do you want to throw it all in one big heap? I think it really doesn't matter if it is all together or not. I think in seperating it, it just puts the adult questions and concerns on one board, the parents with children on another board, and the kids on the last one. In which ANYONE can participate in all of them.
WOW, someone mentioned the last long post from someone being as long as the "War and Peace" book. I think I just wrote the second edition! Sorry so long!
