Congenital Adrenal Hyperplasia

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re: Private Area for little girl
Aug. 12th, 2008   10:28am

My daughter also had corrective surgery at 9 months old but they did Clitoroplasty, Vaginoplasty and Labioplasty.  Yet when she was 2 1/2 I was told by her Urologist that she had the organ/male body part that would make her clitoris erect.  So he done another surgery on her which removed that and redone the labioplasty.  She is 8 years old now with no further surgeries in sight until teenage years and that depends on how small/larger the vagina opening is.  My daugher was a Prader 5 and had no vagina opening at all the vagina canal had stopped and attached itself to the bladder.  So she had 2 inches of a vagina canal made and opened her up.  Best of wishes to you and your family these are hard times I know but you will soon know no different than living with CAH.  I would make an appointment with your Urologist.

Jennifer D.-Tiara's mom 8 yr old SWCAH

Jennifer D.




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