I don't mind you asking, but please don't get scared! This happened many years ago ('91), when treatment was very different - especially emergency treatment.Joshua had had an ear infection that required some medication about a month previously. When he started tugging on his ears and being cranky again, I took him to the pediatrician who said he was getting a cold, that we should give extra fluids and watch him. On the way home, he threw up once.
He was quite sleepy that evening (what sick child isn't?), but we were watching him. I slept with him that night, making sure he drank something in the middle of the night. In the morning, he was still drowsy (still, I thought, "He's just not feeling well"), and he laid down for a nap again after breakfast, which was not the norm for him. About an hour later, I could not rouse him. I called 911, his heart stopped, I gave him CPR on the kitchen table. The ambulance arrived and took him 45 minutes away to Children's Hospital, but he had a seizure along the way, and was brain dead by the time we got there. I was thankful that there was absolutely NO brain activity, because it made our decision to "unplug" him very easy ..... he died in our arms, 3 weeks before his second birthday.
That said, please understand that we did NOT have injectable meds to give him at home .... it was just not the practise at that time.... no one had them at home. No one knows if it would have made a difference. I find it alarming that he only vomited once .... we were/are always instructed to give the shot after the second time they vomit. The coroner says that his brain swelled up ..... something similar to meningitis - and that perhaps caused adrenal crisis as well. Interestingly, his blood pressure was very LOW .... which is in complete contradiction to adrenal crisis.
Needless to say, I was very nervous when my SW daughter was born. I've really struggled with not being over-protective (and I'm getting much better at it!), and trying to let her live a "normal" life. But it's also important to know and watch your child carefully. I tell parents all the time that when in doubt, inject! Don't let anyone make you feel foolish or overprotective for it ..... they are not the ones who have to deal with all of this, and it's not their children that are at risk. It won't hurt your child if they don't need it, but hesitating can be deadly. It'll get much easier when your son's old enough to tell you how he feels!
Treatment is SO much better now ..... and doctor's (here anyway!) are much more receptive to listening and learning about CAH. Just make sure your injectables are always up-to-date, and that you're not afraid to use them! There's not much else we can do, except pray, pray, pray! With a conscientious mom like you, I'm sure your son will be fine .... enjoy him!
God's blessings.
